The Young Adult Representatives of RDLA (YARR) are excited to launch an addition to our regular programming in 2021. Welcome to the YARR Leadership Academy, a series of on-line courses offered to a select group of young adults in the rare disease community (ages 18-29). Academy students will learn about the roles and opportunities for patient representation in policy-making, drug development, the regulatory process and the steps it takes to get there.
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We're invested in providing a clear pathway for the next generation of young adults who are ready to be leaders in the rare disease community.  Patient perspective is vital in closing the innovation gap and ensuring patients have access to safe and effective treatments. Representation matters. Learn more and apply today!

Applications open January 1st - February 15th, 2021. 
Classes offered March 10th - May 19th, 2021.

​APPLY HERE
 
Questions? Please visit HearusYARR.org or email lcundiff@everylifefoundation.org

For information on sponsorship opportunities, please contact Ted Brasfield at tbrasfield@everylifefoundation.org or Elissa Taylor at etaylor@everylifefoundation.org

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Thrombotic Thrombocytopenic Purpura (TTP)

From Discovery of ADAMTS13 to Practice Guidelines 

Presented by Long Zheng, M.D., Ph.D
Department of Pathology & Laboratory Medicine
University of Kansas Medical Center
August 10, 2020